Center for Rare and Neglected Diseases at Notre Dame

You may have heard that research on Niemann-Pick will be conducted in the Center for Rare and Neglected Diseases. Now, the question is, what is the Center? With Professor Kasturi Haldar as the founding director, we started this initiative in 2008 to fill a gap in treating diseases that large pharmaceutical companies tend to ignore because chances for profit are small. Rare diseases, including Niemann-Pick Type C, have a limited market (usually fewer than 200,000 people), and diseases that mostly affect the world’s poor, such as tuberculosis, malaria and lymphatic filariasis, are neglected even though they affect billions.

We think that it’s part of our mission at the University of Notre Dame to serve those people. The Center brings together researchers from College of Science departments as well as the Colleges of Engineering and Arts and Letters and the Center for Social Concerns. We have also entered a beneficial partnership with Eli Lilly & Company for drug discovery and development for Niemann-Pick and malaria.

The Center is a great example of Notre Dame’s unique ability to bring together the best scientific research and the mission to serve people around the world. We have recently received a gift from Notre Dame alumni couple Jim Parsons and Carrie Quinn. Carrie, who is a pediatrician herself, and Jim were both struck by the importance of this work and wanted to demonstrate their support. Please join Jim and Carrie and show your confidence in us with a gift to the bike ride. All the proceeds will go to help our research effort.

Niemann-Pick Type C is a fatal disease that affects children.  Support groundbreaking research today!



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