Guest Post by Cindy Parseghian

Looking back to the fall of 1994 when Michael, Marcia and Christa were diagnosed with Niemann Pick Type C (NP-C) disease, we never expected the incredible outpouring of support from so many individuals. Our family has experienced the ultimate in human kindness, and it has been the Notre Dame community that has been with us each step of the journey.

Throughout the years, the Notre Dame community has shed tears of understanding when our three children succumbed to NP-C. Members of this community have held us up while our hearts have broken and have said many prayers of support. In addition, Notre Dame clubs around the country have held fundraising events and ND alumni have overwhelmed us with their generous financial donations.

Greg and Renate are tremendous examples of the Notre Dame spirit. They have taken on the challenge of the Desert to Dome bike ride in an effort to aide the NP-C research efforts by raising awareness and donations. Every turn of their bicycle pedals will help bring us closer to developing a therapy for all of the children who struggle with the ravages of NP-C disease.

The research partnership established five years ago between the Ara Parseghian Medical Research Foundation and Notre Dame is shedding new light on the disease. The NP-C Drug Discovery Core at ND has become a resource for researchers worldwide who are working on developing therapies for the disease. By strengthening this partnership, we are confident that Notre Dame will be a leader in this battle against NP-C.

Notre Dame is unique among research institutions in its willingness to tackle rare diseases. ND has never shied away from helping the most underserved in the world. Notre Dame brings expertise and dedication to the NP-C field, which gives children with the disease, and their families, hope for a brighter future.



1 Comment so far

  1.    CAROLEE on August 12th, 2010

    RENATE

    I HOPE YOU HAD A HAPPY BIRTHDAY! YOU ARE DOING A GREAT JOB PUTTING UP W/ GREG FOR SO LONG.

    WE MISS YOU

    LOVE
    CAROLEE