Greg biking in the mountains

Renate and I are looking forward to hitting the open road and talking with researchers and families.

3 Comments so far

  1.    Rich Taylor on June 11th, 2011

    The NPC conference wrapped up beautifully. Good luck to you both as you start your journey.


  2.    rhonda kehoe on June 13th, 2011

    I want to thank Greg and Renate for taking this ‘show’ on the road. I had a wonderful time meeting them at CAV resturant in Providence. Their journey will hopefully bring more public awareness to this rare disease. Please know, to a family, there is nothing rare about it. It is always on our minds. A hope, a cure, each day of research, each penny of donations and each time the words NPD hit the headlines,mean medication and ultimately a cure will happen. Thank you,slainte and safe travels!