Day 30: Sacramento to Milpitas, CA

Today was a tougher than we expected it to be.  The California roads were busy and the group riders were split up today along the 110 mile journey. My wife Renate joined us for the ride today. She rode with me for the first two years, and in subsequent years she rode various legs of the trip.  Bruce and Tom came along for another day, and Sean even got back on the bike for today’s trip.

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Day 24: Vernal to Orem, UT

The ride to Orem was beautiful today, especially the second part of the ride and the arrival into town. The morning seemed warm when we started, but as we descended 2,000 feet, the temperature dropped nearly 20 degrees. The mountains in Utah are simply spectacular and many of them are still snow-capped.

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Day 21: Denver to Granby, CO

The day started off wonderful with an interview with KUSA/NBC and a visit to Marley Coffee in Denver.  Marley has been such a great supporter of our cause.  The company’s headquarters in Denver is the coolest headquarters ever. I was even asked to ride my bike through it.  It was great to meet the wonderful Marley employees. Thanks for all of your support.

Interview with Gary Shapiro at KUSA in Denver

Interview with Gary Shapiro at KUSA in Denver


Today’s journey was perhaps the roughest I have experienced in all five rides. It started off so well.  Jim, a recent Notre Dame graduate and captain of the Notre Dame Cycling Team last year, joined us for the first part of the ride to Estes Park. On the way, we climbed to 8,000 feet and then descended to about 7,000 feet.

Jim and Greg

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Day 10: Notre Dame, IN to Chicago, IL

The day started off bright and early with an interview at WNDU, and then we left from their parking lot.  The ride from Notre Dame to Chicago was cold and damp, with the wind sometimes with us and sometimes against us. We were hugging the lake for a bit, and the clouds and wind created an eerie beauty over the water.

Dave, Jeff, & Sean

Dave, Jeff, Greg & Sean

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Road to Discovery sponsors

We have such a great group of sponsors who share our vision for the Road to Discovery and help make sure that the funds raised during the ride will go to research for discoveries that will cure rare diseases. When you look at the list, it’s a pretty interesting combination – the Ara Parseghian Medical Research Foundation (APMRF), Ivy Court Inn & Suites,, Aegerion Pharmaceuticals, Amicus Therapeutics, Notre Dame Federal Credit Union (NDFCU), Rein Juicery in South Bend, and Retrophin, a biopharmaceutical company. To me, what they have in common is a commitment to service and promoting the well-being of people. Read more »

Coach Parseghian

Everyone has their favorite inspirational figure, favorite leader, or favorite coach. Ever since growing up in northeastern Ohio, Coach Ara Parseghian has been my favorite coach.  In addition to a phenomenal coaching career with two national championships, he is an extraordinary human being — overflowing with all of the Notre Dame virtues we value so much as a community and family.

Coach Parseghian Read more »

You can help us raise $25,000 for NPC research on 4/5 at the Parseghian Cup


I am excited to announce that  College of Science has teamed up with the Notre Dame men’s rugby team and the Ara Parseghian Medical Research Foundation for the 2nd annual Parseghian Cup on April 5, a rugby game between the Fighting Irish and the University of Arizona Wildcats to raise money for Niemann-Pick Type C disease.

A generous donor has pledged to give $25 to NPC research for every person who attends the game (up to $25,000).  Help make this the biggest game in Notre Dame Rugby history by bringing a big group of your family, friends, and neighbors to help us raise money for NPC research! Our goal is to get 1,000 people at the game so we can earn the entire $25,000. Read more »

Join Notre Dame Science & Irish Soccer this Friday for the flying Frisbee contest

This weekend, the College of Science is partnering with the Women’s Soccer Team to raise money for Niemann-Pick Type C (NPC) disease research in a very fun way!

Bring your friends and family and join the College of Science to watch the Lady Irish face Oakland on Friday, August 31 at 7:00 p.m. at Alumni Stadium.

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Day 35: Silver Spring to Baltimore, Md.

Finish line!

Finish line!

It was a phenomenal end to the ride. As I rolled into the hotel, there were all of these Niemann-Pick families and children, and many Notre Dame Club of Maryland members. I was so honored to arrive to this cheering crowd. The kids the families were all there and it was such a great ending to this year’s ride. And even before I got off my bike, Coach Parseghian called to congratulate me on the fundraising success – a special moment in the midst of so many special moments. I was surrounded by these families whose passion, compassion, perseverance and magnanimity have been such an inspiration and shaped so much of how I think about life. It was overwhelming. Some of them wanted to get a picture with me, but I was the one honored to be in a picture with them. Read more »

Halfway to Baltimore

halfwayI crossed the halfway point today, and I’m getting really excited about making it to Baltimore to meet the children with NPC and their families at the end of the road at the NNPDF conference. Many of them are friends that I have met before over the years, and they have always amazed me. Even at this distance, their passion and compassion, their courage and perseverance in the face of this life challenge inspire me in all I do, including this Road to Discovery, to finish the journey, as they inspire our Notre Dame scientists and students to cross that goal line for a cure. Read more »

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