Day 28: Fallon, NV to South Lake Tahoe, CA

Today we left Nevada and crossed the border into California.  It was a pretty mountainous ride from Fallon to South Lake Tahoe.

We made  a special stop in Reno to visit the Hempel family. Addison and Cassidy are identical twin girls who were diagnosed with NPC in October 2007 when they were four years old. Their parents, Chris and Hugh Hempel, stepped up with extraordinary courage and perseverance and joined the fight against NPC for Addi and Cassi like so many families who find themselves in such circumstances and respond with generosity and hope. In 2012, the Hempels drove to Carson City to meet me along the Road to Discovery route. This year, Addi and Cassi met me right under the Reno sign downtown with their little specialty bicycles. Seeing them was such an incredible inspiration. At the College of Science, we always say that’s it’s not just what we do, it’s why we do it. The Hempel twins are a great reason that we continue this fight against NPC. Thank you, Hempel family, for coming out to see me. Addi and Cassi, it was wonderful seeing you again—you inspire us all!

Visit with Cassi and Addi Hempel, and their dad Hugh

Visiting Cassi and Addi Hempel, and their dad Hugh

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Day 30: Fallon, NV to Lake Tahoe, CA

Today was a very, very special day for me.  During first part of the day, I biked 65 miles from Fallon to Carson City, NV, where I had to the opportunity to have a very inspirational meeting. I met two special little girls, Cassidy and Addison Hempel. Cassi and Addi are eight year old twins with Niemann-Pick Type C disease.  Their parents Chris and Hugh, as well as their grandparents, brought the girls to meet me.
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