Expert Interview- Debra Stanley, Founder and Manager of IMANI UNIDAD

Ethnography Summary

Grace Hasbun and Victoria Velasquez interviewed Debra Stanley, the founder and manager of Imani Unidad. Debra was in company of Bayay, Peer to Peer group coordinator, and Andy, intern.


 ^ Debra’s contagious laughter

Date: March 3, 2017

Type: Expert Interview

Location: 914 Lincoln Way West, Colfax Cultural Center, first floor

Team participants: Victoria Velazques & Grace Hasbun

User Characteristics:  Female, age 50s, 60s

Passionate. Founder and manager of Imani Unidad, a charitable, non-profit organization whose goal is to provide community education and advocacy efforts to its members, who are strongly stigmatized by both society and themselves.

GH and VV interviewed Debra concerning the main issues Imani Unidad addresses. Information involved the organization’s mission, goals, structure, members, and services. Focusing on what Debra believes is the main problems or barriers the members encounter when interacting with the community. Specifically, barriers involving housing and employment due to society’s stigmas.

Members of Imani Unidad (target users): The organization includes HIV/AIDS and/or formerly incarcerated individuals, Individuals with substance abuse history.

Personal Development Portion: Personal Development Portion helps reduce the stigmas that are self-imposed by the members. Imani Unidad unlike other agencies focuses on the internal development piece of the individuals and the community education about their situation. This focus is due to a gap Debra saw in the other regular services, whose focus is merely on external re-installation. The organization includes Individual and Group Level Services for Personal Development. This is an essential piece for HIV+, former incarcerated, and/or individuals with substance abuse; this service is “very much tailored to the individual, and our whole goal is to help them get to the place where they become their own best advocate”.

Community Education Portion: The Community Education Portion seeks to help members against societal stigmas and barriers for to HIV+, former incarcerated, and/or individuals with substance abuse issues.  Including City Council, County Council, Landlords, Employers. Who pose barriers and stigmas towards the individuals.

Top 3 learnings:

(1) Imani Unidad offers personal development services that are tailored to the individual’s needs and to impulse the personal desires of improving. Also, it allow them to grow on the community/group/peer support.

(2) The community education part requires a lot of work, considering the current situation stigmatization. Specifically, for the target group it is hard to find housing, employment and even healthcare. Thus, it becomes a cyclical/vicious cycle that leads them to falling again in substance abuse, and/or homelessness, and not able to personally develop.

(3) At this juncture Debra and Imani Unidad are trying to formulate the “talking points” that speak specifically to the community.  Formulate what exactly are the barriers/situations, stigmas/discrimination, and laws/corruption that are currently negatively impacting both Imani Unidad members and society as a whole.
Differentiate between the believed vs actual consequences/results of these barriers built.

Key Insight: Imani Unidad deals with marginalized people. Their goal is making sure that these individuals become their best advocates, and to educate the community so that they don’t build barriers that discriminate this group unnecessarily.

 

QUOTES

“We are the, what I consider, the personal development piece… allowing them to get to the place where they could become their own best advocate”

“…so it is very individualized, no box or pattern, and different people want different things, and that’s what we are all about.”

“Why are they (government officials) allowing substandard structures to exist..”

“you end up discriminating against people, unnecessarily”
“part of the education is trying to build people up”

(…topic: individuals speaking up for their rights…)
“There is always this fear that the adverse impact is going to be greater is I say something”
“This allows people who discriminate, even greater power over people”
“That’s why education with folks is so important; creating this sense of community and support… so they don’t have to feel so alone.”

Activities:

  • Debra had arrived to SB 3 days before, arriving from California.
  • Grace called Debra to confirm appointment, nice and welcoming she gave directions
  • At the time of the meeting Debra was working in her office, and guided to a larger “meeting room” with Andy.
  • Introduced Bayay and Andy
  • Grace took pictures and recorded the conversation

Environment

  • 12:00-1:30pm
  • “meeting room” had bright, lively orange walls, and animal/forest paintings that students had painted as a service for Imani Unidad.
  • Red brick buiding was a large and “antique”
  • First floor, large room with long crocodile shaped carved wood.

Interactions:

  • Individuals in the building guided Grace to Debra’s office
  • Input and further insights from Bayay, Andy
  • Debra was passionate, loud, and has a contagious laughter

Objects:

  • Large table to sit around
  • paper, pen, glasses
  • Office room, with computers, many files
  • GH and VV labtops
  • Phone’s video camara

Users:

  • Debra Stanley
  • Bayay
  • Andy
  • Grace Hasbun
  • Victoria Velazquez

Interview 10 – Student Interview: David Weaver

Ethnographic Summary

David Weaver

Quick Bio: Senior at Clay High School. Heavily involved in CTE, specifically Construction and Transportation. Attended Brown Intermediate. Gets A’s and B’s in classes.

Date: March 3, 2017

Location: Clay High School Auto Shop

Type of observation: Interview

Team participants: Conducted interview alone

Age: 12th grade

 Why did he choose Clay High?

  • Brother and sister attended Clay High, so the decision was already made for him.
  • David also lives nearby.
  • CTE Programs best fit his interests

Environment:

  • During what the CTE instructor considered an “off-day”, where students were working on cleaning up equipment.
  • Two other classmates were working with him, with several students walking in and out of the room. Some welding CTE students came by to drop off a tire rack they had created in the other class.

Notable comments:

  • Used to be in ROTC, but program was cancelled while he was attending.
  • Planning to go to school like Ivy Tech to further CTE education.
  • Guidance counselors are involved in his development, and likes the teachers he has had.
  • Studied at Riley briefly for a construction CTE course; worked in an actual house for real world practice

Key Insights:

  • Program does a good job already with preparing students for immediate employment, and instructors can help students get scouted into their jobs.
  • CTE could be a really valuable resource and marketable program for those not as interested in academics.

Ethnographic Research – Individual Interviews – Paul & Victoria Koenig

Connor De Mill interviewed his grandparents Paul and Victoria Koenig, less active late retirees.

Date: 03/06/17

Phone Interview: South Bend, IN – Tyson’s Corner, VA

Classification: “Inactive late retirees”

Characteristics:

  • Paul aged 83
  • Victoria aged 82
  • Married living together
  • Paul retired Navy engineer & Korean War veteran
  • Paul was diagnosed with Parkinson’s Disease in 2012
  • Both were very active before Paul’s Parkinson’s Diagnosis
    • Paul used to perform frequent yard work and home improvements, even in old age

Needs:

  • Frequent communication with physician and family members
  • News and weather information
  • Accessibility

Pain Points:

  • Transportation and travel
    • No longer allowed to drive on the highway
  • New technology
  • Large amount of medications are difficult to manage

Insights:

  • Communication with physician and family is key to physical and mental well being
  • Accessibility is key to encouraging both physical and mental activity

 

Ethnography – Expert Interview (Direct of Client Services)

I interviewed Julie at REAL Services, INC (Below is Julie, Front of REAL Services Building, REAL Services Logo):

Name: Julie

Age: 29

Occupation: Director of Client Services at REAL Services, Inc.

Summary: REAL Services, Inc. is an umbrella social services agency that has over 20 programs including elderly care, energy assistance, nutrition and transportation, and community action. Real Services has a partnership with Saint Joseph Health and Memorial while serving patients across 5 counties in Northern Indiana. Patients can privately pay for transportation assistance or, if applicable, use Medicaid coverage to get transportation to and from health appointments. Real Services assigns Case Managers to certain patients that need help, particularly with transportation. Volunteers and paid employees help with patient transport, but there is a limited amount of these volunteers and workers which limits the dates and times that can be offered to patients for transportation.

Key Insights and Quotes:

Real Services has a diverse, interdisciplinary team composed of various professionals including physicians, nurses, bus drivers, workers at REAL Services, community workers, and social workers. This advisory team has been working to create a more efficient way to transport patient to and from their appointments. Real Services has a moderately sized fleet of cars and vans to help patients transport. They have tried to implement taxis in the past but had a negative experience with them as the taxis were dirty and unkempt (not ideal for patient transport).  Finally, with the aging population (Baby Boomers), it is important to expect and respond to an increasing amount of elderly patients needing services.

“One patient said that the taxi driver was smoking in the car while driving the patient to the hospital.”

“We are looking into working with Uber, but we need more financial support to move froward with that.”

“While REAL Services does transport patients, but our transportation services operate within a very specific time frame which leaves some patients without transportation help.”

Ethnography – User Interview (Receptionist)

I interviewed a volunteer receptionist/clinical aid named Erik at the Sister Maura Brannick Health Center of the Saint Joseph Health System:

Name: Erik

Age: 24

Occupation: Volunteer/ Dooley Intern (Works as a receptionist and clinical aid) at the Sister Maura Brannick Health Center of the Saint Joseph Health System

Summary of Interview:

The Sister Maura Brannick Health Center provides services to those who are uninsured. Most patients are undocumented and Hispanic. While the center does occasionally give out bus passes, most of the center’s patients walk as they live close to the center. A lot of patients come to their appointments with family and friends.

Key Insights and Quotes:

The Sister Maura Brannick Health Center has recognized the issue of patient transportation within the Saint Joseph Health System and has worked with the University of Notre Dame to assign students to conduct a research investigation in order gain metrics on patient transportation need and supply. Because most of the center’s patients walk to their appointments, patient transportation is hugely dependent on the weather conditions with much lower attendance during the winter season.

The center is open late on Tuesday evenings to accommodate those patients who work during the day. The volume of patients is extremely high during this time.

Due to the center’s Hispanic population, the health center and transportation services in the area could benefit from having workers who know how to speak Spanish.

“Some inefficiencies arise when there is a language barrier between the patients and the center’s workers.”

“Attendance for appointments is much higher during the summer when the weather is nicer.”

“If a patient misses an appointment, there rarely is a follow up call to assess the reason(s) why the appointment was missed. We are looking into implementing follow-up calls in the coming months.”

Ethnography – User Interview (Patient)

I interviewed a patient in the lobby of the Our Lady of the Rosary Health Center of the Saint Joseph Health System (the patient requested to not be photographed):

Name of Patient: Rose (accompanied by her son Shawn)

Age: 72

Occupation: Retired (spends time reading, sewing, watching television, seeing her children)

Familial/Marital Status: Widowed. Rose does have four children. Her son typically helps her get to her appointments using his car on Monday afternoons when he is off from work.

Summary of Interview: Rose is an elderly, immobile patient in a wheelchair who typically goes to the health center once a month. Her son is a huge help to her as he has been taking her to all of her appointments over the past five years. Rose has chronic pain so it is important that she sees a doctor monthly in order to manage her pain and make any adjustments as needed.

Key Insights and Quotes:

While Rose has multiple children, she relies heavily on her son who supports her greatly. Without her son, she would have a much harder time getting to their appointments, especially because she is immobile. She works with the receptionist to schedule appointments almost exclusively on Monday afternoons if possible as that is the time of the week when her son if off work. Overall, while Rose is limited by her lack of mobility and time of the week when she can make it to the health center, Rose is able to keep up with her health. Rose is fortunate to have her son. Without her son, she would have a much harder time getting to her appointments.

“I come to Our Lady of the Rosary to feel better and reduce pain.”

“Buses are hard and cold. I wish that the bus was more comfortable.”

“I feel warm and safe in my son’s car. I really appreciate his help.”

 

Analogous Immersion

My team tried contacting the South Bend Public School Bus System to learn about how they manage the transportation of students to and from school. We were not able to contact people who worked in the busing system and turned to other resources to learn about how public schools approach the organization of busing routes.  A public school system organizing the transportation of students across various regions and districts is similar to how a hospital may organize their transportation fleet to transport patients to and from their health appointments. Here is the information and online link to the public school system that we used to gather our information: The Rosemount-Apple Valley-Eagan Public Schools website is located here: http://www.district196.org/

School Bus Organization:

  • Parents receive a postcard before school starts each fall showing bus stop locations, bus numbers, and times to take children to school
  • School bus drivers do not have the authority to change bus routes or student pick-up/drop-off locations
  • Bus stops are typically located at least three blocks apart
  • Up to 25 students may be assigned to a bus stop
  • Routes are established so no student rides the bus for more than 75 minutes one way (preschool students may not ride the bus more than 45 minutes one way)
  • All decisions regarding school bus system organization center around providing safe and efficient transportation for students

Important Insights:

  • Proper and even spacing of bus stop locations and times improves efficiency and uniformity among the school district’s busing fleet
  • Establishing a maximum time that a student may ride the bus helps prevent long and burdensome bus rides for children (adapted for preschoolers to have an even shorter ride) – this can be applied to patients, having a shorter maximum time for elderly patients that other patients
  • The overall goal of the school bus system is to ensure safe and timely rides for students (providing safe and timely transportation is something that all transportation service should strive for)
  • The school bus system consistently assesses bus routes and stops and are flexible in making changes to make the system more efficient

Interactive Ethnography – Patient Perspective

I asked an elderly, immobile patient at Our Lady of the Rosary Health Center of the Saint Joseph Health System to view several images on a iPad. Once the patient viewed the images, I asked her to express her thoughts, feelings, and experiences with me. Below are the images I showed the patient, along with the patient’s responses:

   – Patient felt comfortable seeing this image. The patient associated this image with the final destination and a place where the patient can go for help and relief from suffering. Patient was happy to see this image and felt a sense of satisfaction.

 – Patient did not like this image primarily due to the fact that the patient felt that buses were uncomfortable and even dangerous. Patient has tried to take buses to places in the past but has not had good experiences with them. The patient expressed that, due to the patient’s immobility (wheelchair), buses present a huge challenge and sometimes cannot accommodate the patient in an immobile condition.

 

   – The patient was elderly and did not have a smart phone. The patient was entirely unfamiliar with this image and was not interested in learning more about it.

 

 – The patient found this image to be fairly neutral. The patient has used taxis in the past, but for transportation to a health center. The patient also cited the cost of taking a taxi as a reason for avoiding this method of transportation.

 – The patient felt best upon viewing this image. The patient expressed that this is her favorite method of transportation. While the patient cannot drive, the patient consistently has the help of family members who help the patient get to places, including health centers.

 

The patient was accompanied by a younger family member who facilitated the patient’s response to the above images. It was interesting to see how favorably the patient felt upon seeing the health center building, associating the picture of the building with help and healing.

Immersion – Cole Gillan and Dan Thompson

Daniel Thompson and I participated in an immersion using the Transpo Bus Services in South Bend to see how a patient living near Notre Dame’s campus could get to the Saint Joseph Regional Medical Center if he/she has an appointment there. We initially got on the bus at bus stop “5” (see below) near the Martin’s Supermarket behind Notre Dame’s campus.

Once we arrived to the University Park Mall, we had to transfer buses in order to proceed to the Hospital.

Including the time it took to wait for a transfer bus at the mall, it took Daniel and I a total of around 57 minutes to get from the Martin’s Supermarket to the Saint Joe Regional Medical Center.

The trip felt long and a bit tiresome, which is valuable information to know considering the condition of a traveling ill patient. The cost for us was free as Notre Dame students. If we were not students the cost would be $2.00 to get to the hospital. The buses were punctual;however, we did not perform a return trip from the hospital back to Martin’s. While the bus drivers were kind and the seating was fairly comfortable, Dan and I talked about how taking the bus, as an ill and/or elderly patient, could be physically and mentally challenging and, in some time-sensitive situations, unpractical.

 

Ethnography – Individual Interview

Ethnography Summary

Mark interviewed his father to gain insight into the life of a firefighter of 26 years who is nearing retirement. His father is on the far low end of the spectrum that we are considering and we hope that we can analyze his lifestyle to get an idea of what people are doing as they near retirement.

Date: 3/4/17

Type: Interview

Location: Facetime Interview

Team participants: Mark Egan

User Characteristics:  “Motivated Do’er“

Male, Aged 49

Position: Battalion Chief FDNY

From: Staten Island, NY

 

What is this person about – what drives him/her?

Mark’s dad is very family driven and technically savvy, he finds himself being the person who is called by all family members whenever any sort of home improvements are needed. Keeping these skills sharp is something that he takes pride in.

 

Memorable quote from interview: “I’ve got the curse, but it’s important to know these things.” (When asked about his home improvement and carpentry skills, he responds that he has the curse of knowledge and is hence called upon by everyone imaginable to fix things around the house.)

 

Top 3 Learnings:

  1. Turning skills into hobbies is therapeutic and works the mind, keeping it sharp.
  2. Keeping up physical fitness into retirement is important for longevity of the body.
  3. Retiring at a young age can lead to many advantages, allowing extra time for many of the healthy practices that we have been seeing are important for retirees.    

 

Key Insight – There are many ways to keep the mind sharp as we age. Some people obsessively read,

some play games, others practice skills.

 

ACTIVITIES:

  • Running with dog
  • Working at firehouse
  • Reading newspaper
  • Traveling with wife

 

ENVIRONMENT:

  • Home
  • Gym
  • Firehouse

 

INTERACTIONS:

  • Interacts with family
  • Walks dog
  • Work relationships

 

OBJECTS:

  • Car
  • Firetruck
  • Running shoes
  • Dog leash

 

USERS:

  • Immediate and extended family
  • Friends
  • Fellow Firefighters
  • Dog
  • Neighbors